Tag Archives: #ea/tef #awareness #birthdefects #tenacious #tough #determined #reslient #oneword #faith #courage

January is EA/TEF Awareness Month

Blog EA TEF Awareness 2018

Photo Credit: http://differentdream.com/2018/01/eatef-awareness-month-january-2018/

The New Year is a time to set goals, resolutions. Many folks are using the #oneword resolution idea, and many are choosing the word “DETERMINED” or “RESILIENT” for their New Year’s goal.

Both are perfect words for EA/TEF Awareness Month. The little ones diagnosed with this rare defect are certainly determined and resilient. They are tenacious and tough in their fight. My granddaughter certainly has been so far.

Back in July 2017, I briefly introduced you to my newest granddaughter, Miss Lucy Lavonne. Remember…she didn’t stick to the schedule. 🙂 Miss Lucy has had quite the journey in her first 6 months of life. She is one resilient and determined little fighter!

Lucy was born with EA/TEF – VACTERL which are rare congenital defects. If you are an MD, you understand all those letters. However, if you are like the majority of us, you probably had to google it because we have no idea what those letters stand for. Just click on the link to save yourself some time.

Six months and 3 surgeries later, Miss Lucy is our miracle grandbaby. She has proven to be one courageous little fighter with the cutest giggles you’ll ever hear.  And if this grandma may say so herself…she is beautiful! 🙂

We are forever grateful for all who have prayed diligently for her. And of course, we ask that you please continue those prayers.

For all the sweet EA/TEF and VACTERL fighters out there along with their mommas and daddys, we lift you up in prayer. Be strong. Be courageous. Be determined. Be resilient. Be full of faith. Be blessed!

May God grant you an abundance of peace during this awareness month and in all the days, months, and years to come. ❤

Blog EA_TEF VACTERL Princess

Stay Calm & Fight on Little Ones!
Profs Dr. Wendy & Dr. V.